Fondations et registres sur la FK
- Canada – Fibrose kystique Canada
Registre canadien sur la fibrose kystique
- États-Unis – Cystic Fibrosis Foundation
Cystic Fibrosis Foundation US Registry
- Europe – Cystic Fibrosis Europe
Cystic Fibrosis Europe Registry
- Royaume-Uni – Cystic Fibrosis Trust
Cystic Fibrosis Trust UK Registry
- France – Vaincre la Mucoviscidose
Vaincre la Mucoviscidose Registry
Conférences sur la FK
Autres ressources sur la FK
- Hospital for Sick Children
- Toronto Adult CF Centre
- Clinical and Functional Translation of CFTR
- Cystic Fibrosis Research Inc.
- ECFS Nursing Special Interest Group
- European Psychosocial Special Interest Group (CF)
- International Physiotherapy Group for Cystic Fibrosis
- European Cystic Fibrosis Society – Molecular & Cell Biology and Physiology Basic Science Working Group
- European Cystic Fibrosis Society – Diagnostic Network Working Group
- European Cystic Fibrosis Society – Exercise Working Group
- European Cystic Fibrosis Society – Gene Modifier Working Group
- European Cystic Fibrosis Society – Neonatal Screening Working Group
- European Cystic Fibrosis Society – Non Tuberculous Mycobacterial Working Group
- European Cystic Fibrosis Society – Mental Health Working Group
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